More?? Really?

As if our weary brains haven't been littered with enough worry....

I was looking online at some stories about babies/children who are coping with Tetralogy of Fallot and noticed that a lot of the stories that involved both TOF and Pulmonary Atresia (what our baby has) also involved DiGeorge Syndrome. It is a chromosomal anomaly that involves the partial deletion of the 22nd chromosome, which can affect the baby's immune system, facial features, learning abilities and more... Hmmmmm....so I did some research and found that the odds of our babe having this syndrome are about 40% or so. I called our genetic counselor to see if my amnio had by chance tested for this syndrome. Her response: "We didn't test for it, but we should have." UUGGGgggg!! At this point our options are to wait till birth to find out if the baby has this anomaly, or do another amniocentesis to find out ahead of time. I'm not big on worrying for long periods of time (although I should be used to this by now), so I am opting to do another amnio on Wednesday. Another long needle in the belly, another 10-day wait, another problem to worry about for our baby...

This is when I have my meltdown.

I thought we had rounded a corner and that we were at least done with the worrying portion of the pregnancy, but alas...there always seems to be more these days. I'm trying so hard to stay positive amidst all of this and find peace and strength to get through it. Thankfully my wonderful husband helps tremendously. Without him, you'd all be visiting me in the mental wing of the hospital instead of the maternity ward.

Our baby will have enough to overcome once he enters this world. Please pray that the heart issues are ALL he is going to have to deal with.

p.s. I hate the internet.