How is Elijah doing these days?

Communication

We are so thrilled with the improvements in speech Elijah has made over the past few months. Four months ago he said maybe five words. Three months ago he said about 40 words. Now? He says a couple hundred different words. They are "his" version, of course, and Dan and I usually have to translate to others, but this is huge and very exciting. He even said his first two-word phrase the other day! He said, "Bye bye, Dada!"

His speech therapist just re-evaluated him and the results showed that he is basically caught up! I get little tears in my eyes writing those words because his language explosion has come as a huge and very pleasant surprise to us. He does still qualify for speech therapy, though, because he could use some help with saying the beginnings of words and making the words he says a little clearer in general. He is still using some nasal sounds to say some of his words and that goes hand-in-hand with not moving enough air through his mouth. He has improved a lot with this, so we continue to work with him by encouraging him to use whistles and kazoos and to blow air through straws, etc.

His sign language has taken off, too! A few months ago he had maybe two or three regular signs that he used. Now he will sign (or at least try) any word we show him. Amazing!

Gross motor

Elijah is still working hard to walk independently. He uses his walker more willingly now and he cruises along furniture much more comfortably than he did even a few weeks ago. We still don't know the reason for his very low muscle tone and whether or not his tethered spinal cord surgery has been the reason for his recent improvements or if it will help him with his walking. We would like to think that the surgery has helped, but it's hard to say for sure.

The fact that he is steadily getting stronger is a promising sign. He is now climbing stairs like a monkey, and even going back down them on his own. He wasn't even close to climbing stairs a month ago, so this is another huge feat. He crawls around the house like crazy and he even has a funny half crawl/half walk thing he does sometimes. One thing that we noticed an immediate improvement on after his surgery in June was his willingness/ability to reach out of his immediate comfort zone to get things. This is something he refused to do before, but he was doing it freely within a week of his surgery. Releasing that tether must have made certain movements a lot more comfortable for him.

Social

Elijah's social skills are something I have spent a whole lot of time worrying about. Because of all of his hospital time and sick time he spent a lot of the first two years of his life with just us. Until recently, he has not done very well while in large groups of people, or even medium groups of people or small-to-medium groups of people. It's just something he wasn't used to, so it overwhelmed him.

About a year ago we found a daycare for him that we loved (and still love). It's a small home with a handful of kids for him to interact with. He has gone through some periods where he has been pretty uncomfortable at this daycare, even as recently as one month ago. Some days he wouldn't eat any food, or he wouldn't move from one spot, even though he was physically able to, or he would just seem out of sorts and overwhelmed.

We have learned that he is definitely a kid who needs a little nudging to be a part of social situations because without a nudge, he would be content spending the rest of his life with just Dan and me. Sometimes I feel bad for pushing him into situations that he isn't necessarily comfortable with, but ultimately we know this is the best thing for him. As we suspected it would, his daycare setting has given him confidence that Dan and I never could have given him on our own.

In the past few weeks a switch seems to have been flipped (his daycare provider's exact words) and he is a totally new man! He cruises everywhere, he has been eating and sleeping well and he is playing well and interacting with the other kids.

With that said, Elijah still does have a hard time in some social settings. In really large settings, like the Splash Park we went to last weekend, he still tends to get pretty overwhelmed. When he gets to the point of feeling like he isn't comfortable, he tends to stay in one spot (preferably close to me or Dan) and just observe his surroundings.

We are in the midst of his biggest developmental spurt yet--socially, physically and verbally. I cannot describe in words how wonderful this makes me feel. It is amazing!!!

Cardiac

We will be taking Elijah in for a heart check within the next month or so. The plan back in April (which could very well be different next month) was to do a heart cath this fall and open heart surgery (valve replacement) next spring.

Other

Elijah's weight is good. He lingered right around 27 pounds for almost a year, but recently he broke the 28-lb mark, so this is great. His height hasn't moved much within the past year either but we aren't too worried about that right now, especially with the recent genetic testing all coming back normal.

He is slowly getting past some of his texture issues. He is still pretty selective about putting anything with a unique color or texture in his mouth, but luckily there are a lot of foods he willingly eats. Overall, he is a very good eater. I always call him my little dairy man because he is totally head over heels for all dairy foods.

Potty training is on the horizon, but we haven't begun yet. I don't think he is 100% ready at the moment. We will give it a try this fall.

He still loves trucks, trains and his new recent love is airplanes. I don't know how this kid can hear planes as well as he does. It's pretty amazing. We'll be sitting inside with the doors shut and the air conditioner running while watching Thomas the Train and he will smile and do the sign for airplane and say "AAAyyyyyy!" I'll listen closely and sure enough, I'll hear the ever faintest hum of an airplane in the sky about a hundred miles away.

Elijah is still in PT (2x/week), speech (1-2x/week) and OT (1x/week) and we will be continuing this through the fall/winter, and hopefully beyond that as well. His name has been put into the drawing for receiving hippotherapy this fall, so we are hoping he is chosen!

We thank God every night for the health He has bestowed on Elijah this summer. It has been such a welcome, nice reprieve from the illness-ridden fall/winter/spring of 2008-2009. In a few weeks we will check to see if the Pneumovax booster helped to create the antibodies he was lacking during his immunity check in June. Please pray for this!

There is much more I could say about our precious boy, but I'll stop here. He is doing amazingly well in every arena and we are so thrilled about the huge spurt he is going through right now. We just love this little boy to pieces!!