Four-month reprieve

Belly button fetish. Gotta be pushing it like a button at all times!

Elijah's cardiology check-up today went very well. Well, it was good in terms of news we got. It wasn't so good in the traumatization aspect. He freaked out about every little thing...getting weighed, getting blood pressure taken, being looked at by anyone besides Dan or me. His sats were at 99%, which is just awesome, and Dr. Gremmels was pleased with how he has been doing. The only issue right now is a slight murmur Dr. G could hear, which is caused by the narrowing he has in his pulmonary artery. A stent was placed in it during his surgery in April, so it is likely he is outgrowing that stent. Dr. G didn't see this as being a super pressing issue, but that we should address it within the next 6 months.

The plan is to have another heart cath done in January to make that stent bigger and also to check on his collaterals and how/if they have grown since surgery. The same day, right before the cath, he will also have a flow scan done of his lungs. This will show how evenly the blood is flowing to each lung. The hope is that there will be equal, or at least very similar, bloodflow.

He hasn't gained much weight since the last visit in June, but Dr. G didn't seem too concerned. Since he is moving around more, he is most likely burning off the calories quicker. He certainly doesn't have a problem eating food.

That was it! Our little man is doing great heart-wise and otherwise. I can't believe we have FOUR MONTHS before we have to see cardiology again. This is the longest reprieve we have ever had from them. Yaayyy!

There is one little weird thing we have noticed lately that we cannot figure out. Elijah has been getting these little red bumps all over his body that come and go within a matter of minutes or hours. They look like really small mosquito bites. They don't seem to bother him and the nurse we talked to said not to worry unless he gets a fever or has other strange symptoms. At first I thought maybe he had little bugs in his bed, so we washed all of his bedding. Nope, that wasn't it, because they were back the next day. Could it be an allergy to something? Does anyone have insight? It's driving me crazy! It's not like there are a ton of them, but probably 4-5 on his body at any given moment, and they usually come in clusters.