I want to say thank you to all of you who have been so supportive in the past few days/weeks. We have received so many uplifting comments and emails, and we are so thankful for them all. We have such a wonderful group of people supporting us and praying for us. THANK YOU.
Now for some medical stuff. I talked to Elijah's pediatrician about the croup/breathing issue and she said that it was treated appropriately (steroids and nebs) but if we wanted to come in to discuss things further, we can. She didn't seem concerned, and I haven't decided if I should be or not. I am terrified of another middle-of-the-night episode happening again, but I don't know that there is anything we would be able to do to prevent it besides running his humidifier every night and giving him nebulizer treatments twice/day, both of which we do consistently.
For the past few weeks, Elijah has had slightly puffy eyes when he wakes up in the morning. I called Dr. G about 10 days ago and he said to call back if it was still happening in a week or two. It is still happening. I called him yesterday and he wants to see Elijah in the clinic soon. There is a possible opening this Thursday (really hoping we can get in then) and if that doesn't work, we won't get in till next week sometime. I'll find out today when the appt will be.
It is possible that he just needs to be treated with some Lasix since his pulmonary artery is a bit stressed right now and may be causing his body to retain a little bit of fluid. Hopefully this is the extent of it and we can go forward with our January cath plan. It will help ease my mind to get him checked out by the awesome Dr. G.
Thank you so much for checking in on us and for keeping our little man in your prayers. We love you all so much!
3 comments:
You are doing a great job dealing with his tantrums! Don't beat yourself up over letting him watch his show. That's called 'diversion' and if it works, then Yeah! Ignore the tantrum then get them interested in something else. You have the basics down! (And if all else fails, keep a stash of itty-bitty suckers. When he calms down, use one of those to reward him for calming himself)
Hugs!!!
You're welcome! Its just so nice that we've all connected & understand the "normal" things that affect heart kids! You compile that on top of 'normal' kid issues & well, lets just say we have our hands full!
Sounds like you're on top of things! What a great Momma you are - Elijah is so very lucky!
Praying that everything checks out okay & he's back to his 'rotten' adorable self soon! Big hugs!
We just love you guys so much! Elijah is so lucky to have such a wonderful mom. Your always on top of everything.
Love,
Vanessa & Arianna
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