There are some things I can let go and some things I cannot. When it comes to the little boy I have fought for with my entire heart, I tend to not let things go. Sooo..
We absolutely do not use Elijah's heart defects as a crutch! And, I made the "school for CHD children" comment in very much a joking manner. Like, hey, wouldn't it make the lives of us CHD parents so much easier? Like it's all about us parents, right? Ha!
Receiving true understanding from the important people in Elijah's life (teachers/therapists/caregivers) is supremely important to us at this point in our CHD journey. We enlighten all of the pertinent people about his medical history because ultimately it helps them to better help him. And hopefully that means he will get caught up with the rest of his peers more quickly.
Trust me, I want my awesome little boy to live the most "normal" life possible. That is why I fight so hard for him NOW.
Here, little wormies, crawl back into the can so I can put the lid tightly back on.
6 comments:
Yowsa... Megan, you are amazing! just remember the purpose of blogs is for you to be able to say what YOU want to say, what's on YOUR heart at that moment. It's not for others to judge. We only have one Judger.... Praying for you!
Sad that someone made you feel as if you had to post this. You are a fabulous Momma who has endured so much! Bless you, sweet friend!
Michelle
Loving both of the above comments!
Hang tight girl!!! :0)
The fact that you had to defend yourself from such cruel and unfair judgment makes me sad and angry. You and Dan are both amazing parents and all-around wonderful human beings. It is obvious to those of us who care about your family how much you love and adore your boys and only want the best for them. MOST importantly, your boys truly know this in their hearts. Hang in there, dear friend, and God bless you all!
Hoping you are feeling the love...
Deb
Megan, we are always there for you and your family!
Lots of love from Cecilia & Paul xo
Don't ever feel like you have to defend yourself. You are Eli's #1 advocate. To best help him people NEED to understand his whole history. The reasons he has delays are totally different than the reasons another child might be delayed and that changes everything! The teachers only get a snapshot of him and they try to do their best but they really do appreciate it when a parent helps them fill in the total picture. Eli is not just a heart condition, or a case study. He is a person, his own person. A person who has had to overcome unbelievable things and yet he is happy, healthy and scrumptious. Huge kudos to his wonderful parents for that!
Post a Comment