Mild to moderate croup episodes do not earn their own episode numbers, but Elijah had a "dot-one" last night. It involved a barky cough and mild difficulty breathing. Compared to Sunday night it was a piece of cake. Dan and Elijah sat in a steamy bathroom and then in the cool outside air and after that things were manageable. He coughed a bit early in the morning, but all was well. He has been in bed for 2.5 hours tonight and we just heard a bit of a barky cough. It may be another night of mild croup, but we're praying for none of it!
The past two days have brought sleeplessness, anxiety and frustration as I continue to ponder and worry about Elijah being totally overwhelmed by full days at school. The scripted lines that have been delivered to me over and over make me want to scream at the top of my lungs. We continue to try connecting educators with doctors in an attempt to make things easier. As far as I know, this hasn't happened yet.
Dan accompanied Elijah on a field trip today. E seemed to have reached his limit by noon, so Dan brought him home (he thought ahead and had driven himself...SUCH a good daddy!). We are going to try sending Elijah to school the rest of this week and one day next week. Monday he has a cardiology appointment that will take most of the morning and Wed-Fri is MEA. This is perfect. We are hoping to finally get him back to baseline. After that, well....to be continued! I have a few ideas which depend on a few different factors. My top priority with this situation: making things less overwhelming for Elijah-->shortening his days at school-->doing whatever it takes to make that happen. If it can't happen, we will take him out of school SOON and figure something else out. We...HE...cannot go on like this.
It's a busy week! I'm in Cannon Falls working all week and Dan is working two new jobs (that makes FIVE jobs total for him). Despite the craziness, I feel like we have good perspective and we are so grateful for everything, including these new struggles. We know everything will come together and that good things will come of all of this.
Thanks so much for peeking in. I hope you all have a great rest of your week!
2 comments:
Matthew 6:34
So don't be anxious about tomorrow. God will take care of your tomorrow too. Live one day at a time.
May you find comfort in knowing that not only you but Jesus is walking this path with you and your family. Hugs and Prayers!
Lynn
Hi Megan, I have a heart baby that is 7 now and have been following you for years (just silently). Recently, after much struggle/debate/praying/sleepless nights, we took Macy Jane out of the public school system and put her in a small private Cheistian school. Do you have that option near you? I never in a million years thought we could put her in private because of her learning problems and therapies (Speech, OT/PT) but the difference is amazing. Therapy can be provided by the public school still and the class size is much smaller and individualized. MJ misses a lot of school and they are very accommodating in that they send work home ahead of time and communicate daily and allow her to shorten days etc. The difference is that they are not held to the state/government standard. Just thought maybe this would be a possibility. I also LOVE that she has Bible verses to learn and Bible stories to read. I hope you find answers soon, I'm praying for you!!
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