Tuesday, October 13, 2015

Cardiology check-up and IEP meeting

The past week has been FULL and filled with great news! On Friday we took Elijah to his 6-month cardiology check-up. Instinctively I knew everything would be good and that turned out to be the case! His heart function and pressures are the same as they were six months ago, which is pretty incredible. For the past 2.5 years not a whole lot has changed with his heart even despite him continuing to grow. Dr. G told us to keep doing what we're doing and to come back in six months. One of these years Elijah is going to need a heart cath, but it's impossible to know exactly when (we thought it would need to happen almost 2 years ago!). And after that, he'll need another open heart surgery but we will have to play that by ear, as well.

Our second bit of GREAT news comes from E's IEP meeting today! I know. I have never used the word "great" to describe an IEP meeting. It sounds like the same positive changes we have seen at home in the past few months are being seen at school, as well. Every person who spoke in the meeting today talked of significant positive changes from last year. His two main struggles are blurting out inappropriately and staying on task while completing school work, but compared to last year he is doing SO much better in both areas. I told his team today that for the first time in TWO YEARS, we are not just scraping by. We all have extra energy for things in the "other" category, which feels sooo good. For the past few years, anything "extra" that came home in his backpack (extracurricular opportunities, fundraisers, etc) went straight in the trash can after a loud "HA!" escaped my mouth. This year some of those things are actually feasible! It feels amazing and we are so incredibly thankful for the changes and the way this medication helps his brain. It felt good to sit down and chat with Elijah's excellent educators and not be totally sleep-deprived and edgy and anxious. It was a relaxed meeting and we were able to discuss how to help Elijah above and beyond just getting him through each day. The main objectives in this year's IEP are improving his social skills, helping him to be more self-aware and to get him to advocate for himself when appropriate. He is actually making strides in these areas already, which is awesome!

To go along with the more-than-scraping-by theme, Dan and I have pushed ourselves in some areas, as well. After technically being a part of a small group at church for two years and NEVER going to a single gathering, we finally went to one on Sunday night. We got a babysitter to come put Elijah to bed (since we still can't skimp in that area quite yet) and brought Sammy with us so he could play with some of his sweet friends from Sunday school. On the drive home he said, "Mommy, this was the best day EVER. I love Hayden's house sooo much." Dan and I felt a good connection with the group and we are excited to get more involved.

This is my second week working in Cannon Falls and it's going fine. The mornings are EARLY, but I have to be home by 3:00 for the bus so it's a short day. It's good to have the extra money (Christmas $$!) and I love the people I work with. The boys have the rest of the week off school, so they'll be going to daycare for a couple days (pray this goes well).

Here's to many more great weeks! Thanks for checking in!

No comments: