Remembering..

Six years ago, two days after open heart surgery #2, Elijah was getting love from this amazing nurse! She had also cared for him after his first heart surgery when he was 3 months old. She is one of the INCREDIBLE ones. We will always remember her as one of the most loving and caring nurses we've ever had.

CHD awareness week

Did you know that it is officially Congenital Heart Disease Awareness week? In an attempt to raise awareness, a fellow heart mom has conducted interviews and is posting a heart story for each day of the week leading up to February 14th.

I didn't get through our story without crying, can you?

Stefenie, thank you so much for putting these together! What a great way to make people more aware of this disease.

Hello, can of worms!

There are some things I can let go and some things I cannot. When it comes to the little boy I have fought for with my entire heart, I tend to not let things go. Sooo..

We absolutely do not use Elijah's heart defects as a crutch! And, I made the "school for CHD children" comment in very much a joking manner. Like, hey, wouldn't it make the lives of us CHD parents so much easier? Like it's all about us parents, right? Ha!

Receiving true understanding from the important people in Elijah's life (teachers/therapists/caregivers) is supremely important to us at this point in our CHD journey. We enlighten all of the pertinent people about his medical history because ultimately it helps them to better help him. And hopefully that means he will get caught up with the rest of his peers more quickly.

Trust me, I want my awesome little boy to live the most "normal" life possible. That is why I fight so hard for him NOW.

Here, little wormies, crawl back into the can so I can put the lid tightly back on.

Congenital Heart Disease

Below is an amazing tribute to a handful of children with Congenital Heart Disease (most still living, a few angels). The video was put together by Paul Cardall, an adult CHD survivor who is currently waiting for a heart transplant. He is a huge inspiration to many families with children who have CHD. Paul is also an amazing musician and his music can be heard in the video.

(Elijah is at about 3:45 in the video. And, am I the only one who bawls like a baby while watching this??)



Please pray for all of these children and for their families, and also pray that Paul gets his new heart soon.



We have some very fun adventures planned for our weekend! Hopefully we will have plenty of photos and stories to share on Sunday night. Have a great weekend, everyone!