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Calendar and a collection of events and information

Diagnoses

- Tetralogy of Fallot, Pulmonary Atresia, MAPCAs (repaired Apr 15, 2008; expect valve replacement in early 2011?)

- Solitary left kidney (no reflux)

- Hypospadias (repaired Aug 20, 2008)

- Tethered spinal cord (diagnosed May 11, 2009/repaired June 18, 2009)



Hospitalizations*/surgeries

Feb 20, 2007 – Hospitalized following birth due to feeding issues and heart monitoring (ventilated for 3 days/hospitalized for 2.5 weeks)

Feb 20, 2007 – Heart catheterization (already ventilated due to birth complications)

May 2, 2007 – Heart catheterization (not ventilated/no overnight stay)

May 25, 2007 – Open heart surgery to place shunt and repair collaterals (ventilated for 6 days/hospitalized for 10 days)

Jul 27, 2007 – Bronchoscopy (ventilated for less than 1 hour/no overnight stay)

Oct 29, 2007 – Heart catheterization (ventilated for 5 hours/no overnight stay)

Mar 19, 2008 – Heart catheterization (ventilated for 3 hours/no overnight stay)

Apr 15, 2008 – Open heart surgery to replace shunt with bovine valve, repair collaterals and place stent in pulmonary artery (ventilated for 3 days/hospitalized for 8 days)

Aug 20, 2008 – Hypospadias repair (ventilated for 3 hours/no overnight stay)

Nov 26, 2008 – Heart catheterization (ventilated for 5 hours/hospitalized for 1 day)

May 11, 2009 – MRI scan of brain/spine (ventilated for 2 hours/no overnight stay)

June 18, 2009 - Neurosurgery to release tethered spinal cord (ventilated for 2 hours/hospitalized for 5 days)

Nov 9, 2009 – Heart catheterization (ventilated for 3 hours/no overnight stay)

* Also has had a handful of hospitalizations related to croup (no ventilation) and heart failure (no ventilation).



Upcoming procedures/appointments

Spring 2010 – Follow-up with urology

Spring 2010 - Follow-up with neurosurgery

May 2010 - Follow-up with cardiology

Summer 2010 – Follow-up with genetics

Fall 2010 - Follow-up with pulmonology (if no issues before then)

Fall 2010 – Follow-up with neurology

Early 2011 (??) – Open heart surgery valve replacement, collateral and pulmonary artery repair

Posted by The Portas 2:48 PM  

1 comments:

At 2:05 PM Cecilia said...

Thank you for the update!!!

 

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