We are on for surgery tomorrow! Dr. Gremmels didn't seem super concerned about the congested nose. He said it might cause Elijah to be intubated a few days longer than usual, but he doesn't want to put off surgery much longer. His heart is screaming to be fixed! His sats were at 49-53% today. Yikes.
He has been such an amazingly good boy today. Even when he had to get blood drawn, he was so strong and brave and only cried when the needle was in his arm. He flirted like crazy with Dr. G and everyone else we saw and he had everyone giggling. Aside from the congested nose, he appears to be feeling pretty good today. He's almost back to his usual giggly, silly self.
We'll get to the hospital at 6:00 tomorrow morning and surgery starts at 7:30. Dr. G expects a 5-6-hour surgery. Dr. Moga will be replacing his shunt with a valve and he'll be fixing the hole and possibly doing some work to some arteries if needed. Expected recovery time is two weeks in the hospital.
Please PRAY for our boy and for Dr. Moga to be at his very best tomorrow. Thank you so much! We will write updates throughout the day.
DEEP breath, ug, here we go!
22 comments:
Lots of prayers for Elijah tomorrow morning and for both of you!! Surgery and recovery will go smoothly. Please keep us updated and I'm so happy you don't have to wait any longer.
Love & prayers,
The Domanicos
Lots and lots of prayers to you all tonight, tomorrow and throughout the recovery period. I am glad that this cold is not standing in the way of our beautiful boy getting all fixed up! He is an amazing little trooper and he is going to be so strong tomorrow. You try to get some rest tonight...yea right! Just think...you are so close to having sats of 100 and NO MORE BLUE!!!
Please call me or email me if you need anything at all...
Lots and lots of love!!!!
Samantha
Wendy, Emma's mom sent me your way. My son also has ToF, and has had his full repair. I'll be thinking of your little Elijah tomorrow, and hoping that all goes well with his surgery. He is a real cutie. When I can get a chance I'd like to come back and read more about him, and will add your blog to the list of those I am following.
Our blog: http://khanfamilyoffive.blogspot.com
Excellent news to hear Elijah is set for surgery tomorrow. You'll be in our thoughts and prayers. Wishing you all the best!
Love,
The RA
Megan,
I will be keeping your sweet little man in my prayers! I hope that all goes well tomorrow....I'll be checking in for updates! Thanks for all of your notes throughout Emma's surgery....now it's your turn, and I pray that Elijah does as well as Emma has!!!
Lots and lots of heart hugs,
Wendy (& Emma, too!)
www.caringbridge.org/visit/emmanicole
I shared Dan's feelings that all would progress as planned. This is great news! I am sure little Eli knows that better health is on its way.....and is in great spirits!
Best of luck tomorrow morning. You will be in my thoughts and prayers all day long. Big hugs!!
Lisa
I just got home and hurried to see what the verdict would be! I know you guys are all ready for Eli to be fixed! Try to get some rest tonight...long day tomorrow but it will all be worth it!! You have a celebrity working on your little man so it's going to go great!!!
Saying big prayers for you!
Love,
Cindy
Oh...we'll keep praying for you guys. I'm glad that they think he's healthy enough to get in and get out!!
We know they'll be LOTS of snuggling going on in the Porta house tonight!
Be brave Megan...your tough little guys is going to be just fine!!!
Hugs to you all,
Kathy
I know this is what you all have been praying and gearing towards... praying for a wonderful night of snuggles and love. Praying for the Dr.'s and nurses that will be over Elijah's care tomorrow. Will be rejoicing with you tomorrow when Elijah is with you and the road to recovery starts! God Bless you. Heart Hugs.
I have been following Eljah's blog every day and I have been praying for your son as well as all of the heart babies. They are all fighters and have very strong families and lots of support from many caring people on these blogs. So glad it was not postponed as it looks like he needs the surgery. Prayers and strength to you all.
Colin's grandmother from CT
Hooray! Good health for E is just around the corner!I will be praying for bravery for everyone, wisdom for Dr. M and fantastic and speedy healing and recovery for the chunk-ster. Love you all!
Ann Marie
Megan and Dan,
I'm so happy to hear that Elijah's heart gets help tomorrow! I've been thinking about you guys constantly and checking the blog five times a day, I swear. Hopefully in a couple short weeks you'll actually be able to get some SLEEP!
Miss you guys...
Heather
Omg... I have goosebumps.... I am excited for you all.....
I will be thinking of you all...
I know you will keep us updated all the way... Ty for your email...
I will be in touch again soon...
We will certainly be praying for your little man!
Good news! Prayers will go out for all involved in Elijah's surgery tomorrow. Dr. Moga, for steady hands. Strength and rest for mom and dad. Rest and strength for Elijah's mind, body, and soul. Most of all, the ICU nurses. That nurse you get right after surgery has an amazing and tough job balancing all of the bodily functions. Elijah is going to be well before long. Get some rest and god bless you all tomorrow.
Tiffany
Wow, so exciting. We'll be praying with you for a safe surgery and quick recovery...
Megan and Dan:
We are putting Elijah on our Prayer Chain again and asking God to surround him with FAVOR as a shield. Love you guys; you are all an inspiration!
Phill & Linda G.
Hi,
I found you guys through Ehlan, and have been keeping up for a while. I'm glad surgery is staying on as scheduled, and I KNOW that Elijah will do great!
Thinking of you and especially tomorrow and the days of recovery after. It is never easy, even after 5 open hearts and a 22-year-old heart child. Elijah will be fine and you need to sleep/eat so you can get through this!
The Hennen family wishes Elijah and the Portas good luck tomorrow. We will be praying for you all! Love the Hennens
The is Kate Layman's Nana. I have been following your blog for several months. Wishing you the best for tomorrow, peace, comfort, steady hand sfor the Dr., good results. Will add Elijah to our prayer tonight and the next weeks. Nana King
Meg, Dan and Eli,
You are in our thoughts and prayers this week. I wanted to share with you one of my favorite songs. When I hear this song, I think about the sweet little ones in my life and I feel so blessed to be a part of theirs. It's perfect for Eli.
Godspeed - Dixie Chicks
Dragon tales and the "water is wide"
Pirate's sail and lost boys fly
Fish bite moonbeams every night
And I love you
The rocket racer's all tuckered out
Superman's in pajamas on the couch
Goodnight moon, we'll find the mouse
And I love you
God bless mommy and match box cars
God bless dad and thanks for the stars
God heard "Amen," wherever you are
And I love you
Godspeed, little man
Sweet dreams, little man
Oh my love will fly to you each night on angels wings
Godspeed
Sweet dreams
Love and Hugs,
Tammy & Doug (Dexter too!)
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