Thursday, April 17, 2008

Wiggling, drugs, excellent doctors and wonderful nurses

Elijah has had some more rhythm issues tonight with his heart. Every once in a while the beats are prolonged and uneven. This started happening around 5:00, of course when no doctors were around, so I've been freaking out about it ever since. Our nurse Terri (more on her wonderfulness below) assured us it was probably fine and she even brought in Dr. Baker to assure me it was nothing to worry about. Sorry, but I need to hear it from Dr. G! Finally, Dr. Gremmels came around about 5 minutes ago (does he EVER go home to his family???) and looked at the heart monitor and said, "Ok." I said, "Well? Isn't that alarming to you?" He said, "Alarming? Zero!" Apparently the pressures in his heart are getting used to functioning in a whole new way and it's going to take a few days to be totally normal. THANK YOU, DR. GREMMELS! You just saved me from having a sleepless night!

When we were in the hospital for Elijah's first surgery, we had a wonderful night nurse named Terri who we fell in love with. She was excellent and compassionate and she loved Elijah. Well, we have her again tonight! I am so happy about this. Our little munchkin is in GOOD hands tonight, so I can sleep even better!


Terri, we love you!

We have had to give Elijah A LOT of drugs today to keep him calm. Every time they start to wear off (pretty often), he wiggles and cries and flops around. We're praying for a good night of rest so he can be ready for extubation tomorrow, if Dr. Moga OKs it.

I asked about the nose intubation and apparently they do it on all cardiac babies because that is the only way they can do a trans-esophogeal echocardiogram post-surgery (an echo through the inside of the esophagus, which is much closer to the heart and is much more accurate than one given through the outside of the chest). It is also more comfortable having a tube up your nose as opposed to your mouth, apparently.

Ok, we're going to find out if we get another gurney tonight or an actual bed! Have a good night everyone. Thanks for checking in, thanks for the prayers and thanks for those of you who have given us food! We haven't had a chance to personally thank you all yet. We'll get there! xoxoxoxo

14 comments:

TimnKatienElinSam said...

Thank you for updating. It is nice to know that you guys are all doing well. We will keep praying for more of the same! I hope you get a sleep room tonight!

Blessings,
katie and the boys

Anonymous said...

So happy to see that Elijah is doing well! Mitch and I were just reminiscing about Wilson's time in the PICU -- we were nearly crazy from lack of sleep, and from having to carry all our stuff with us (we couldn't leave anything in the PICU room). But it sounds like you are having a pretty positive experience, overall.

We like seeing the pictures of Elijah. He really looks great! Maybe the non-heart families don't think so, or don't see why on earth we would say that, but we are impressed.

We continue to keep you in our thoughts and prayers.

Amy, Mitch & Wilson

Anonymous said...

have a good night! I'm glad Dr. Gremmels made you feel better! And even more glad that you have a nurse you love and trust tonight so you can try to get a little rest! Saying big prayers for tomorrow!!!

Cindy

Krista said...

So glad things are going relatively smoothly. I hope you get a great night's sleep.

I remember breathing those sighs of relief when the night nurses came on and we got one we loved...made the night so much easier...at least easier to leave her to get some sleep!

thinking of you bunches!

Tina:0) said...

Glad to hear that your little man continues to make steady progress! I, too, remember those nurses who've made an impact during previous stays! I only hope that we have some "repeat offenders" with Nevaeh's third go around! Praying that things go well & they are able to extubate him tomorrow! One step closer to home!

Tina Walp:0)

Anonymous said...

Can't wait till the little man is awake so I can see his adorable smile! Glad all is going well with the recovery...big relief!

Miss you bunches,

Heather

Little Baby Manning said...

hi ... we are friends of the rollers and kings in vegas and i just happened to look at your blog for the first time today after seeing your name on their blogs. and i'm so glad i did! - we will start praying for your little boy and that he has a speedy and successful recovery. we also have a heart baby and had our most recent surgery in dec (we'll need more)... these days right after surgery are always so scary, aren't they!? it looks like you've got great support and just add one more to the list! we'll be checking in and praying for you....

the mannings

Mike and Jamie said...

Wow. I'm so glad things are going well and am truely impressed by your great attitude in all your entries. You and Dan's obvious strength in all this is just a wonderful testament to your faith and trust that God is working on lil Elijah and his heart. Good to see the O2 levels up!

Hope you guys get a bed soon (;

Mike

Unknown said...

I am so glad you have a wonderful nurse and get a good nights rest. (Well as good as you can in the hospital)

Elijah still looks great! I'm so glad they let him have another day to rest. I'll be checking back in first thing in the morning. Get some rest...both of you!

OXOXOX

Anonymous said...

I hope you all are sleeping soundly and having sweet dreams!

I can't wait to see you all. We'll be there on Saturday for lunch!

Love you. It's sooo awesome to read the good news! We can all sleep well tonight too...

Wanna_B_slimmer said...

Glad you have been reassured... makes the world of difference from someone you trust!!!

Terri@SteelMagnolia said...

Good to know about the nose intubation deal...

I am keeping you all in my thoughts and prayers...

Kiss that sweet baby for us...

I am happy to see Lisa stopped by... we have our own little support group here in Vegas.

I'm off to my oldest sons heart procedure this morning....
*big sigh* I worry as much about my 25 yr old as I do my 3 year old...

Sarah said...

Aren't good nurses and Dr.'s the best? Continuing to pray.

jencooper said...

I am so happy to hear that Master Eli is doing so well. I am praying for a successful extubation. Sorry I haven't commented lately. We were fighting the stomach bug. We have been praying very hard. We love ya'll!

<3,
Jen