Jackpot

Elijah hit the toy jackpot this week! Dan's mom gave him a wooden train set and some new books (one of which is being held by The Lounger in the previous post), and then our friend Cara gave him her daughter's old toy barn and animals, which are just awesome. He adores every bit of it. He has been in a toy daze all week. That is, in between being in a Thomas the Train daze and an I-need-to-be-outside-RIGHT-NOW-or-else-I'll-start-flopping-like-a-fish daze.



We have had a quiet week, which has been really nice in comparison to the past few. Elijah re-entered the world of daycare, and he didn't necessarily love that. It had been three weeks since he was there, so he cried giant, dramatic tears of sadness when Dan dropped him off each morning. We feel it is really important for Elijah to be around other children on a regular basis. He naturally stays close to whatever and whoever is safe (us), so it is good for him to regularly interact with other people without us around. Hopefully we are done with surgeries and the hospital for a while so we can get him back into a steady, tear-free daycare routine.

We are hoping Dan can get some work this weekend (why can't money start falling from the sky?), and we have a few fun things planned, too. I don't have to work tomorrow, so I have an extra bounce in my step tonight.

Elijah's incision still looks great and his rash hasn't come back. He has continued to recover amazingly well after his recent surgery. We are anxious to see what the future holds for his gross motor development now that his spinal cord has been set free!

Have a fun, safe weekend, everyone! Thanks for checking in.


p.s. For those of you who have read the Harry Potter books.. I just finished Book 6 and I was devastated about what happened at the end! (Don't say anything about specifics because Dan doesn't know what happens yet.) How, why, HOW, WHYYY?? (Have you noticed yet that I get a little bit caught up in the books I read?)

Lounging comes naturally for him

Hair

After looking at some of the photos I've posted recently, you must think that we never comb our child's hair.



And that would be a good assumption because we don't. That head of hair has a mind of its own. I could comb through it for five straight minutes and it would look the same as if I didn't comb it at all. So we have learned to let it express itself in whatever way it wishes.

Every once in a while I will see other parents whisper to each other as they look at Elijah. I always wonder if they are commenting on his crazy (awesome) hair, wondering why he isn't walking, or just gushing about how cute he is. Most likely they are gushing about his cuteness because that trumps everything, right?

The stitches came out today! Minus some dramatic tears, all went well. His incision looks great. We have to take him back in two weeks for a final incision check, and guess what? We can't bathe him until then! Oh well, this is really not a big deal, just a slight inconvenience. We will continue on with our sponge baths until then.

Rashy has left our little boy's body! Let's hope it is gone for good, never to return.

This is a short work week, yay! We have a few fun plans and a few other fun ideas for the upcoming weekend, so I'm getting excited. Almost two weeks post-surgery, I'm finally feeling like we can enjoy our summer!

Sunday funday

We took Elijah to the Children's Museum downtown today for the first time and it was awesome! What a cool cool place. We got there right when it opened, so we had the entire ant tunnel floor to ourselves. Dan and I crawled through the tunnels on our hands and knees with Elijah, and we all totally loved it. Our knees started to hurt after a while so we moved onto other things.


Not so sure what to think of the giant ant.

We attempted story time at the museum. I really had no idea how Elijah would do with this. He seemed to want to crawl around and through the kids and just take everything (but the story) in. Then he spotted two huge doors to the right of us. I saw where his gaze was leading and gave Dan the we-have-to-leave-the-room-now look. We are constantly having to divert his attention to other things when he spots doors, cupboards, anything that he can open and close repeatedly. I can just see Elijah in kindergarten, avoiding games and kids and color time because he wants to be along the wall, playing with doors of some sort. I really hope this obsession fades.


Turtle Dan.


This is a door that was painted on a wall (there were a few of these), and Elijah could not understand why he couldn't get it to open.


The water centers were a ton of fun. This was one of his favorite rooms.


He stood there by himself for quite a while.

The rash is better today, thankfully. I'm worried that Elijah has an allergy to Tylenol since last night was the first night I haven't given it to him in over a week. I guess we'll find out the next time he needs it. I'm just glad the bumps seem to be getting better. We were able to spend some time outside this afternoon since it has cooled off, yay!


Using sidewalk chalk for the first time!

I must go grab my dirty boy and give him his nightly sponge bath. I can't wait to be able to throw him in the tub again. He gets his stitches out tomorrow, so hopefully after that we will be cleared for normal baths.


Pretty art, Elijah!


Dan balanced out all of my "hearts and flowers" chalk art with this lovely drawing. I know, weird.

Inside

Washing our hands at the kitchen sink. This is what Elijah does when I ask him to show me his happy face. He grins hugely and points to his smile.

So much for taking a day trip today. We hardly even left our house! This morning it was rainy/cloudy/windy, so Elijah and I hung out at home. The sun came out this afternoon so we went to the park for a bit. About ten minutes into swinging I noticed that Elijah's welty-looking rash was getting worse before my eyes. Arrgghhh! So we headed back home, out of the heat.


Washing my hands (which have just been dunked in the toilet), Mommy!

Elijah just went to bed and I have a date with my book and maybe the tv for a bit after that. Life is so exhausting! :) I'll have to think of an indoor adventure tomorrow so we can avoid making the rash even worse and also so we can get out of this house.


This is what I found in the bathroom tonight. When I came back from setting the camera down, he had his arms dangling over the side of the toilet and was splish-splashing in the water. Fun!

Giving up

I'm posting the same photo as yesterday because of its total cuteness.



I've decided to give up wondering if our little boy will catch a break because it is becoming evident that it's not going to happen. Elijah woke up this morning with a new set of all-over-his-entire-body rashes. Actually, they look like welts. They look awful. They are even on his face and ears. We also noticed that the stitches around his incision are red and appear irritated. I can't wait to get those out. Monday morning!

Dan called The Voice to see if he had insight about the mystery welts. He said everything that was in his body while in the hospital should already be out, so he had no guesses. As long as the rashes don't appear to be bothering him (they don't, thank goodness), he said not to worry too much. We cannot for the life of us figure out what could possibly be causing this! It is maddening. I love what my friend Pam called Elijah today: Bumpy Monkey. How perfect!

I'm going to do my best to accept the fact that it will literally be one thing after another with our Elijah. Maybe then I'll at least feel some peace about everything he (and we) must endure. Like.. Oh good, I'm glad it's strep throat because Human Werewolf Syndrome could have been next! Phew!

Changing the subject completely, Elijah's speech has been very encouraging lately. The other day he mastered the word CAKE. He likes to try saying a word and then I will say it, and we repeat this until he has it somewhat right. It goes like this:

E: [pointing to picture of a cake] Uck
Me: Cake
E: Ake
Me: Cake
E: Ock
Me: Cake
E: Guck
Me: Cake
E: Kuck
Me: Cake
E: Cake
Me: Cake!
E: Cake!

He also started saying CAR this week, and doing the sign for it as well (which is so super cute, by the way). Last night he was saying CARD, which actually comes out sounding like a bad word, so we will have to work on this one some more. His little mind is a sponge. He adores his letter books and he would sit with us and go through them a million times a day if we had the time. He has even sporadically been calling me MAMA. We'll get there! We are constantly so proud of our little man.

I really really wanted to get away this weekend. After a few days of hospital life and then after feeling like an emotional wreck during this aftermath, I want out of the city very badly. Dan will be working all weekend, so I was thinking I would pack up our things and drive somewhere, anywhere, with my sidekick for a night. Now with this new rash development, I suppose I should put that on hold. Who knows, though, maybe he will wake up tomorrow morning rash-free and the two of us will be off to California! Or maybe not quite that far.

Ok, I'm going to practice my giving-up skills now.. Oh goody, Elijah has an awful rash all over his body! That's great because Trichotillomania could have been waiting for him.

Dr. Moga wouldn't like for Elijah to have this disease, so I guess I will embrace you, Rashy!

Mystery bumps

We found a bunch of red bumps all over Elijah's body earlier today, so Dan brought him into the doctor to find out that he is having an allergic reaction to something. We have no idea what it could be. Maybe a lingering medication from his hospital stay? Who knows. We gave him a dose of Benadryl to hopefully help with it tonight.



Even though it was a little bit warm, we played outside for a while tonight. We made an attempt at eating some ice cream in honor of our angel friend Kate, but Elijah was not interested. I guess he is back to refusing entry to anything that doesn't look worthy of going inside his mouth.



Elijah has a new love. Thomas the Train. He makes googly eyes at the Thomas DVD case all day long. He's in love!



That's about all we know today. Thanks for checking in!

As good as our little boy is feeling, I'm beginning to wonder if I imagined surgery?

No new pics again today, so you get one that was taken exactly two years ago..



Our spunky little boy is doing awesome! I never thought he would be doing this well six days after surgery. We had canceled all of his therapies this week in anticipation of him being sore and sluggish or even still in the hospital, but now I wish we wouldn't have. Oh well.

We have noticed that Elijah's appetite has increased a lot since surgery. It has to be a coincidence because I cannot think of any reason why surgery would have made him so hungry. He has always been a good eater overall, with chunks of time here and there where he wouldn't eat very well. And he has always been very selective about what he puts in his mouth. If he doesn't like the way something looks, he absolutely will not allow entry. Yesterday he let me put a fruit snack in his mouth and he ate it! He would not have done that before. Today he was sitting on the floor with a box of crackers in his lap, munching on cracker after cracker. He would not have done that before. Whatever the reason for the increased appetite, yay!

Dr. J, Elijah's neurologist, called today to let us know that the results from his bloodwork that checked for muscle disorders came back perfect! Check off another worry.

Next on our list is to get Elijah scheduled for a hearing test and to get evaluated by an ENT for his nasal speech. Crossing things off the list feels wonderful!

Perspective

I continue to feel like a basketcase today. This always happens. I take a crazy emotional roller coaster ride for a solid week following every surgery. I sat at my desk at work today constantly suppressing much-needed cry sessions. I heard someone gabbing on and on about the drama surrounding last night's Jon and Kate episode (I proudly know nothing about this show) and then I thought of all of the sick babies lying in hospital beds right now. Spending time in a children's hospital has a way of changing a person's perspective. Big time. When you see rows and rows of babies struggling to hold onto life, the little things no longer matter. TV shows, gossip, material possessions, none of that really matters.

I don't have any new pics, so I will choose another random set of numbers and grab an oldie from my archives. I picked my two favorite numbers, 23 and 11, which revealed this photo that was taken at my dad and stepmom's house in North Carolina in December of 2007..



Elijah is doing amazingly well. Like I said yesterday, you would never know what he has recently been through just by looking at him. He is tearing all over the place, being as spunky and funny as ever. He does this thing where he puts random things on his head (crackers, books, cars, whatever is in his hands) and yells, "HAT!" It makes us laugh, so he does it a lot. Today he was putting his cookie on his head and doing this. Then he decided that his cup of milk needed a hat, too, so he balanced the cookie on the cup and said, "HAT!" I love my silly kid.

More random numbers (9 and 18) revealed this photo, taken in October 2008 in the back of our friends Katie and Drew's (parked) truck..



I haven't mentioned that the hearing test that we had planned on having done during surgery never ended up happening. The surgery went so quickly that there wouldn't have been time for it anyway. We did get the immunology and allergy results read to us very quickly in a manner in which I did not fully understand, so I will follow up with Elijah's pediatrician about these. It was something like: one of his numbers came back low which typically indicates a susceptibility to allergies, but that he doesn't currently have allergies. Details to come on that..

Oh, and do you know what is crazy? We don't even do our neurosurgery follow-ups with Elijah's neurosurgeon. That guy is literally just involved in the surgeries. We follow up with The Voice in 3-6 months. Another crazy thing is that a repaired tethered spinal cord can re-tether. That is something to definitely pray against.

It is super hot and humid out today, so we are enjoying an evening inside. Please pray for continued good recovery for our precious little boy, and also for healing, health and peace for all of the babies/families at Children's Hospital right now.

BYE BYE (Elijah's favorite thing to say to doctors and nurses)

Did you say HOME?!

We made it home around noon today. It is so unbelievably nice to be out of the hospital. We ate lunch and took naps after getting home. I had been planning on going into work for at least a little bit today but I'm glad I didn't. I spent a lot of my awake time this afternoon crying and experiencing many mixed emotions that I'm sure my coworkers wouldn't enjoy experiencing with me.


Our quaint little 6th floor (side of the) room.

I was reminded how emotional I get after we get home from a surgery and hospital stay. I keep looking at Elijah, who you would never in a million years know just had major surgery, with total disbelief. His strength never stops amazing me. I keep thinking of the moments in the past week when I felt like it couldn't possibly get any worse and when I felt so overwhelmed and exhausted all I wanted to do was scream and cry. I keep thinking of all of the sick children in that hospital and I feel sadness that so many families have to suffer the hardship of having a sick child. I keep thinking about how different things are now. They always are. The three of us have endured yet another battle together, and we are even closer than we were before. I feel relieved that we have yet another challenge behind us. I feel overwhelmed about all of the love and prayers that have been sent our way in the past few days. As I look at yet another scar on my little boy's body, I feel sadness that he has had to endure so much. I feel exhausted.


Watching some tv before discharge.

I experienced some of my lowest moments during this hospital experience. This is something I didn't expect at all. Going into it, Dan and I figured that since it wasn't a heart surgery that it would be a piece of cake. Overall, it wasn't as intense as his heart surgery recoveries have been, but it definitely was no piece of cake. I am so happy to be done with this particular adventure. Onto other things!


Elijah is totally in love with the trucks that were sent to him at the hospital right before we left. Karen, the care package was so super thoughtful and sweet. Thank you soo much! Honestly, Elijah hasn't put the trucks down since he saw them. As I was getting them out of the packaging, he impatiently said, "GUCK GUCK GUCK" (translated: truck truck truck), until they were in his eager hands. The treats are great, too. Thank you so much!! We had a few other little presents/cards waiting for us in the mail that made me shed a few thankful tears.

Dan is heading to softball (no idea how he has energy for this), Elijah is heading to bed and I am heading upstairs to take a much-needed bath. I can't remember the last time I showered, so it will feel nice not to smell like dirty feet anymore.

Again, thank you to all of you for all of your prayers and love and for checking in on our sweet boy. We are so very thankful for everything.

Relaxing was so yesterday

We had another roommate-less night, sleeping as good as is possible in a hospital. Elijah's nurse removed his catheter right away when he woke up this morning and he has been cruising around the room ever since. It makes me squeamish watching him knowing that he just had a pretty big surgery, but it doesn't seem to bother him one bit. His incision looks really good and he hasn't had any tylenol since yesterday at 4:00 p.m. These are both really good things.

The big thing was to see if his bladder would release urine on its own after having the catheter removed. He just gave us a big wet diaper, so all is well! Thank you for the pee prayers! We are all packed up and are waiting for The Voice to come in to sign our discharge papers, as Elijah crawls around the room checking out every single drawer and door within his reach. Have I ever mentioned how much he loves doors, drawers and enclosed places? The above photos are evidence.

We are very anxious to get home. Hopefully The Voice isn't too busy this morning and he is able to stop by soon. Thank you all so so very much for all of the diligent praying you have done for our little boy. It means more to us than you will ever know.

Elijah has crawled over to me and wants to type you a quick thank you message of his own:

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 , =

Father's Day!

(I have to cheat the system a bit in order to get posts up while in the hospital, and one of the things I am unable to do is put captions under my photos. The top photo I took just a few minutes ago as Elijah was giving Dan a Father's Day kiss. The second pic is from when we were still in the PICU. It's a different perspective of the Amazing Hair. I apologize for the diaper exposure in the third pic, but I wanted to show you all that Elijah has been practicing yoga! The last photo is a happy-faced, video-watching little star, who we love so very very much.)

Happy Father's Day to my wonderful husband, who is also a wonderful daddy! Also, to both of our dads and to Dan's grandpa as well. And of course to the rest of the awesome fathers out there.

It's obviously not ideal to spend Father's Day in the hospital, but I can think of much worse things to endure (hopefully Dan feels the same way). Elijah and I have been trying to make it as special as is possible for him. We have a gift we'll be giving to him later, and I have been trying to get him to nap whenever possible.

I can easily say that we had the best night in the hospital last night that we have ever had. We bartered with the nurses/doctors and agreed upon only one middle-of-the-night vitals check (as opposed to the usual three or four) that none of us even woke up for. We didn't get another roommate, so we had the room all to ourselves. With Dan in his chair-sleeper on the north end of the room and me in mine on the south end and Elijah in between us, we all slept solidly until 6:00 this morning. We are hoping for more of the same tonight.

We have had a good morning. Elijah is hardly on any pain medication and doesn't appear to be hurting at all. He does this with heart surgeries, too. This kid endures pain well, or just doesn't experience much of it. We were able to pick him up for a bit and walk around the hall (avoiding the swine flu end) and gaze at the fishies and Elijah took a short nap on Mama's lap afterwards (ahhh, so nice to hold my boy).

The word on the street is that his catheter will come out in the morning and if he can urinate on his own after that, we will be sent home! Please pray with us for pee! This is awesome news. The doctor on the floor stopped by and said Elijah is doing amazingly well. He gave him an "A+!" The Voice said basically the same thing. We are so proud of our little man.

Thank you so much for checking in on us! We appreciate the love and prayers so very much. xo

Day three

This pic was taken shortly after surgery. I didn't expect to be able to hold him so soon after surgery!

We did not get another roommate tonight, thankfully. We put Elijah to sleep at his usual bedtime and Dan and I watched a movie on the other side of the curtain. Elijah had a really good day today. He got restless occasionally, as any 2-year-old would while lying in a hospital prison, but he really did well.

He will get his catheter removed on Monday to see how his bladder tolerates being catheter-less. Best case scenario, we could be heading home by Tuesday. This means a lot more Veggie Tales and cartwheels to keep our little boy preoccupied.

Dan and I just watched a beautiful sunset beyond the city. The view from our room is amazing! I guess the hospital does bring some good things? We are heading to bed in hopes of being somewhat rested for another day in the hospital..

The 6th floor

At 10:00 last night we were finally moved out of the PICU and to 6th floor (way too late to be transfered, in my opinion). We had never been to the sixth floor before, so the past 16 hours have been a unique experience for us. Up until a few hours ago we were sharing a room with another child recovering from surgery. Whoever thought that sharing rooms in a Children's Hospital was a good idea must not have children of their own. It is an awful idea! We had a very sleepless, anxious night. The little boy we shared a room with was very sick. He vomited all through the night, in between watching tv with the light next to his bed shining brightly and moaning from the pain he was experiencing. I wasn't upset at all with the poor kid who was obviously suffering. I felt horrible for him. He deserved his own room. Especially since Elijah wakes up naturally at 5:30 every morning, talking very loudly.

By the early morning hours, the nurses and doctors were discovering that this other little boy was really really sick. They got him transferred down to the PICU where he could be better cared for, so since about 10:00 we have had the room to ourselves and life has been much more tolerable (and hopefully life for the other little boy is much more tolerable as well). Elijah took a little nap and Dan and I even were able to shut our eyes for a short bit.

Elijah is doing great! The Voice removed his dressing a while ago and his stitches look great. This morning he was kneeling along side the edge of his crib and it freaked me out! The doctor said that as long as it doesn't appear to bother him, he can do whatever he wants. He still doesn't love being on his back, but tolerates it better than he did yesterday. All of his vitals are perfect perfect perfect, and he has an appetite that is voracious. He is mostly content lying around, watching shows and playing with toys.

We will most likely be here until at least Tuesday. We are praying for no new roommate (for everyone's sake), but we will see what the rest of today brings. Hospital life is just dreadful. It sure makes us appreciate our home.

Thanks for checking in on us. Pray with us for an uneventful rest of our stay (oh, and for the swine flu to stay down at the end of the hall)!

Doctors

I posted this pic in my last post and didn't fully explain it. Elijah has great hair. Like, really really great hair. It is full of body and it is thick and he gets a ton of comments about it. Well, Elijah's heart surgeon, Dr. Moga, stopped in for a visit today (hmmm, the surgeon who performed his spine surgery hasn't even shown his face, not that I'm bitter or anything). Dr. M is super awesome and laid back and we had a really nice casual conversation. He asked how we were doing and then he caught sight of Elijah's hair and said, "Sweet, whoa! Look at that hair! He's making Moga jealous!" Elijah said his 2-year-old hellos to Dr. Moga, the man who saved his life (appointed by God), and batted his long lashes at him. It is so so sweet to see the look in Dr. M's eyes when he looks at our little boy. After seriously doting over our boy, Dr. M said, "With that hair, I think Elijah might be a newscaster!"

Speaking of surgeons, our neurosurgeon... Wow. So, apparently he is an excellent neurosurgeon (for which we are grateful) and that is about all. We have seen him walk by our room a couple of times but he hasn't bothered to stop by once. Instead, he has others stop by for him. There is one main doctor who keeps tabs on us for Dr. N. Dan and I call him The Voice. He is the one who communicates with the patients. He is very personable, and we are actually very thankful for him because he has explained things in much more detail than Dr. N ever has. Today we learned that Elijah's tether was "very tight," which means that it is probably going to feel very good now that it has been released.

We still have not gotten moved out of the PICU, at almost 9:00 p.m. It is a good thing we aren't easily riled up because we have literally been waiting around all day to be released from this prison. Ah well, we are so used to plans being made and postponed and changed and made and changed and on and on.. Dan is fast asleep in the recliner and Elijah has been sleeping sideways (perpendicular) in his crib for about an hour and a half. I am an insomniac lately so I am writing about all of our weird and awesome doctors! Stellan is still next door and is doing great. I had Chat #2 with MckMama tonight and I don't think she thinks I'm too strange for tackling her in the hallway today.

Ok, I guess I'll go read or something now. More tomorrow.. Thanks for checking in! We love you all!

A pic from yesterday (before the chaos) and one from today (thankfully there is no photographic evidence of the chaos)

We are still waiting to be moved out of the PICU. Apparently there are a ton of H1N1 cases in this place, so a lot of space is being used up by those patients. Don't even ask me if I'm freaked out about being in such close proximity with swine flu patients or I will start to convulse.

Elijah is doing really well still this afternoon. He is totally refusing to go onto his back, which we hear is unusual but not totally out of the ordinary. He has been hanging out on his tummy ever since he got out of surgery. The doctors don't have a problem with this. They say that he will lead, and he will show us when he is ready to move in whatever ways feel good for him.

We gave him a sponge bath today and washed a lot of the goop off his back. His bandages will come off tomorrow. Our boy is doing great!

Don't be embarrassed having me as a friend/family member/whatever I am to you, when I tell you that I attacked MckMama in the hallway today. Well, I didn't really attack, I just hugged her without introducing myself first. I've just been praying so hard for her baby and I never thought I'd ever meet her, so the moment moved me. Hopefully she didn't think I was too strange.

Thanks for checking in and thanks for all of the prayers, especially after yesterday. Wow, what a day that was. It is one that I will never forget.

Better

Elijah had a very restful night. He slept for eleven glorious hours straight after finding just the right regimen of pain meds. This morning at 5:00 my cell phone rang in our little sleep room. Cell phone ringing so early=typically not good, so I frantically answered it. It was Elijah's nurse saying that he was fine, he was just awake and wanted Mama. I was in his room in about one second, looking lovely, I'm sure (not that I care). He was sooo happy to see me! My little love.

We have been doing our best to keep him happy this morning. He doesn't seem to be in much pain, so at least we know we are managing that well. He is totally alert, though, so it is a bit of a challenge keeping his 2-year-old self not only contained in a crib but also flat on his belly. We are rotating between movies/shows, singing, reading, playing, doing headstands, cartwheels and back flips. Ok, maybe not the last few.

Elijah is drinking lots of apple juice and milk and we are ordering some solid foods for him right now. We are hoping for a much much better day today. The little sleep we did get last night has us refreshed and ready to tackle whatever is in store.

Our plan is to move upstairs sometime today. They are really busy here in the PICU right now, so it may be a while. Can you believe that we are in the room next to Stellan? I haven't worked up the nerve to say hello yet. :)

Thanks for checking in on us! Keep praying for our strong little boy. He's so amazing.

ugh

Even with all the crap we have been through at this horrid place, I have never had a day like today. It sucked (pardon the language and the drama). It sucked even worse than this day, believe it or not.

After Elijah's bad reaction to morphine, the doctors decided on another pain medication. A pain med that made him forget to breathe occasionally. Also, a pain med that didn't seem to work very well at first because we spent hours and hours both monitoring his breathing and trying to make him comfortable. He is so traumatized by everything and everyone here. He has tried multiple times to flop all over the place while screaming harder than I've ever heard him scream, so we have had to hold him down on his belly. It was a really really rough day. We finally found the right combination of drugs to help him fall asleep, so he is snoozing right now.

On top of this, he hadn't peed since being out of surgery, so a catheter had to be inserted. Except, it wasn't as easy as that. It took one nurse and two doctors each to try before it worked. That was a whole lot of trauma and tears (Elijah and me both). Today was one of only two days I have ever cried in the ICU.

Please pray for peace for his little body and for a very good night of rest. Thank you for checking in on our boy.

Recovery

We are in the PICU now with our little man. Elijah is resting comfortably on his tummy with his arm wrapped tightly around Monkey. When he is awake he has been super crabby, repeating DUH (done) and BYE and crying and screaming. As we were just told by a doctor, this is an extremely painful surgery, so we really have to stay on top of the pain meds.

Speaking of pain meds, Elijah has developed an allergy to morphine. I had him lying on my lap when I noticed that he was feeling warm. I lifted his shirt up to cool him off only to find a mass of hives all over his torso. His nurse gave him a dose of Benadryl and that seems to have helped. It totally stinks that he has an allergy. It always felt so good to say, "No!" when the doctors asked if he had any allergies. Because he was on the tail end of a cold and because he was intubated (by the way, he was extubated immediately after surgery), he sounds pretty croupy and is having a hard time catching a breath, especially when he is crying. We are waiting for his first round of nebs right now.

We just got to see our beloved Dr. Gremmels! Aaaahhh, we love him. Everyone here is so wonderful. Elijah is one very well cared for little boy.

We will be in the PICU tonight and tomorrow we will move up to third floor, assuming everything goes well.

Please keep the prayers coming for a complication-free recovery (and no more allergy discoveries!). Thank you!

Yay!

Dr. N is one strange dude. He came in to tell us that "Elijah did really well. Really really well!" He then turned and left the room. While this is wonderful news, a bit more information might have been good?

We'll take it, though. He did really really well. And we will get to see him shortly!