Friday, January 31, 2014

EEG results

For the record, I have never in the history of this 7-year-old blog written more entries within a single month. Lots of entries = lots of commotion.

As we were leaving Dan's beautiful grandmother's celebration service today, I saw that I had received a voicemail message. It was Dr. Judy. No news is good news, so quick news is...a punch in the gut. Elijah's EEG from yesterday showed abnormal results. That is the only information Dr. Judy received and we know nothing beyond that.

I called her back to chat in person, and she was generous (as always) with the time she took to talk to me. We went over some possible reasons for the abnormal results, some of them being: seizures, a sleep disorder and Tourette's Syndrome. She went back to the fact that the Valium helped Elijah's behavior for a period, which made her think seizures were the issue (apparently Valium can help with seizures, as well). But then, a sleep disorder could lead to major sleep deprivation, which could lead to involuntary body movements. She didn't think we had to worry about "the really bad stuff" since whatever we are dealing with has been going on for a while.

I'm trying not to think too much about it. I need to stop myself before going to very bad, fearful places. I have to trust that everything will be ok and that this is just another bump in his very colorful journey.

Next step: get into see Dr. J (neuro) to go over the results and learn what exactly is going on. Baby steps. little step at a time.


Anonymous said...

I have only commented a few times but read all the time. I am so sorry you are having to go thru even more problems with Elijah. I hope the doctors can figure out the missing puzzle piece and get everything fixed! He really is amazing to have been thru so much. He is so cute as is Sammy! It really is no wonder he has problems in school. There is just so much going on with him. You are both great parents and advocates for him. Hang in there! Katherine

Anonymous said...

As unsettling as the news is, remember that these tests are bringing you closer to the much needed answers you've been praying for.

There is a solution in the near future - you're doing all the right things for E!

Lori Smith