Thank you to those of you who commented on my potty woes post. I honestly will take any suggestions or thoughts because I am going out of my mind! Literally this very moment we are in the midst of another huge battle, as I listen to Elijah scream as if someone is cutting off his toes...just because I am making him sit on the toilet after another accident.
We have tried "removing" ourselves and acting as if we don't care one bit whether he goes on the toilet or not. In fact, we still do that. It is TOUGH, but it doesn't seem to affect him. It is so unbelievably hard to stay calm during these hour-long (sometimes more, and sometimes multiple times per day) episodes. It is one of the hardest things I've ever had to do as a parent. All I want to do is scream my head off!
As for the tethered spinal cord, we have considered that. But...he has shown us that he CAN hold it in when he wants to (when he has a raw, sore bottom and it hurts to go). It's worth getting checked, though, and it's something we were planning to do this summer if the chaos continued (which it appears to be doing).
I think it's behavioral, and I just don't feel there is anything more we can try! I am considering consulting a specialist beyond his special ed teachers and OT/PT. It causes such major disharmony for our entire family! I'm at my wit's end!