Our tired boy in the hospital on Thursday, after all the poking and prodding he endured while in the ER.
I won't lie, it's been rough around here. We're dealing with a very sick kid with a fluctuating, mostly high fever and our emotions are all over the place. Dan forced me to take a long bath tonight after we put Elijah to bed and thank goodness for that because I think it increased my sanity points just enough to make it through the rest of the evening. (And he's out getting my favorite take-out for us right now. What a wonderful hubby!) Here's a video of Elijah yesterday after we got home from the hospital after his temperature sky-rocketed to a scary number:
Elijah's temp fluctuated throughout the day today. When we put him to bed it was 101.3 (kdwb! sorry, I'm a little weird right now.). He was pretty tired and warm and crabby most of the day but he just has this underlying strength that we can sense and that makes us feel better about things. He is SO STRONG. I can't believe what his body is going through right now but he can still laugh and babble and act like a ham. This kid is absolutely amazing. And I'm not just saying that because he's my son. He is seriously amazing!
You should have seen us today. We were a well-oiled machine. We constantly had two pillows sitting on the window sill, cooling off (because it is still COLD here in Minnesota). We would take turns holding Elijah with one of the cooled pillows underneath him because we didn't want our body heat to affect his fever. We fed him juice and milk through the day, as much as he would take. We even fed him some solids and he took those pretty well. We watched A LOT of Veggie Tales, because that was one of the only things that kept him happy. I'm going to have Veggie Tales songs in my head forever.
As I took my bath tonight, an important thought came to mind. I thought of the prayer that Dan said today while we were in the midst of emotional turmoil. He asked God for GRACE and PEACE and for HIM to take this burden off our shoulders. It's so simple. We let God handle this. We do the best we can with Elijah. We take care of him the best we know how and God will take care of the rest. He has a plan for Elijah and we have to trust in that. It's that simple (as Veggie Tales will tell you!). All we need to do is take it one day at a time. We got through this day ok and tomorrow we will concentrate on that day. That's all we can do right now.
I have no idea what the future has in store. Things seem so complicated right now but I know that somehow, everything will be ok. Elijah is SO STRONG. He is going to be ok.
We've received so much love and support from our family and friends. THANK YOU ALL SO MUCH. We love you. Thanks for checking in and for leaving uplifting comments. The comments make our day!! xoxoxoxo
Reading books from baby Wilson! Thank you so much, he just adores the NO/YES and HAPPY/SAD books. They are wonderful!
Taking it easy in the LoveSac. Look at that giant tummy! I love it so much!
15 comments:
I have to go chase the kiddies, but I wanted you to know that I have been by, read your entry and will check back in with you soon.
You are so right in your prayers...there is so much we have to just turn over to G-d. He does have a plan for our little miracles.
Hang in there my friends...like I said, I will be back soon (maybe not till tomorrow), but I had to let you know that I continue to think of you all and pray often for you all.
Lots and lots and lots of love,
Samantha
Keeping all of you in our thoughts - I haven't commented (and I can't find your email address!) but I wanted to let you know we've been thinking and reading and sending love and positive energy your way through all of this.
Anyone can email us at
mmporta@gmail.com
or
daporta@gmail.com
Dan & Megan...You two are amazing. I'm sure you are a well-oiled machine...I'm just so glad you have each other right now...and the support of each other to make it through these tough tough days.
Elijah is amazing...as is all of these heart kids...they endure way more than we could ever imagine.
We were hiking up a mountain in
Tennessee and I was totally out of breath....and I thought: is this how Kate felt all the time when her breathing was hard? Poor thing...they just don't know any better and make the best of it! Gotta love em'!
Thinking of you often...checking in and hoping for good news the next few days as you await surgery dates!
One day at a time.....
Lots of prayers for all of you. You are amazing parents. (PS - can Dan give lessons on how to be a great husband? Mine is pretty good, but wow!!)
Elijah is so strong and that is going to be such a benefit him.
Gracie loves Elijah and Megan!!
<3,
Jennifer
PS - Only 2 weeks until LOST starts again!!
WE just LOVE your chubster!!!
He looks like a little old man in that last picture! And his talking...what a smart little man!!! (can't wait to hear Isaac say those words)
You know...Yo Gabba Gabba sings a song called "Baby steps"....I'll sing it to you if you want!>!>
You guys are AWESOME...we'll keep you ALL in our prayers and you WILL be fine!
Love,
Kathy
I think Dan has officially gotten elected to conduct a training class for all the husbands!! How great is he! You guys make quite a team!
Just know God gave Elijah to you guys to take care of him for a reason. He lives in a life of such love!
Praying for strength for all of you!
Love,
Cindy
Megan,
Thinking of you guys while we're here in the hospital....and praying for your little man to get well before his big day. Hang in there....you're so right, let God take care of this. It took me a while to learn that...but I had peace when I passed her over for her surgery. God's in control.
I'll be checking in to see how things are going!
Lots of Heart Hugs & Prayers,
Wendy (& Emma, too!)
www.caringbridge.org/visit/emmanicole
Hi Portas,
You are all doing great -- you guys get the "Parents of the Year" award from me. You will get through this. I watched the video and Elijah looks great, which is a testament to your love and care for him. What a sweet boy. Hang in there, take some deep breaths, trust your judgment and trust Elijah.
We're glad you liked the books!
Take care. We'll be checking in on you and praying as always.
Hugs,
Amy, Mitch, & Wilson
Yes-Elijah is so strong!! Loved the video. He is still so cute even so sick. Colin is being forced to watch the Masters too but, he would rather watch The Wiggles!! Still praying for Elijah to be well for Tuesday!!
The Domanicos
Just wanted to check in with you and tell you I'm still thinking about you guys and praying for Elijah to get well before surgery. You are so right to give it to God. Sometimes it is really hard to do, but when you remember that He is God and He is in control it really feels like a weight is lifted. I'm so glad that you have two great guys to make you feel better at home. And here's my favorite line from veggie tales: "you are special and God loves you very much!"
I love the picture of him reading a book. He just looks so smart. Would be interesting to know what he is thinking as he reads away.
You two are amazing parents and Elijah is lucky to have you taking such good care of him.
You all are on my mind constantly and in my prayers. We are all wishing you the best in the days to come.
Love,
Amanda
Thank you so much for sharing that video. It is amazing how just a couple of words from that little cutie can make someone (me) smile so big. Elijah truly is a star!
The countdown is now just two days. Still confident that Tuesday will be his big day!!
Lisa
Oh girl...
You are all in our prayers...
hugs....
Praying for all the right decisions are made today at pre-op and will check back later. Elijah- I have had strep all weekend with a fever of 103.8 - can I just say I think your video talking and smiling made me look like a big baby!!! Heart Hugs.
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